As part of our King Fool events, we gathered with our audiences for conversations after each performance. King Fool’s content sparked discussions about many related topics: elders and dying, caring for people as they move towards death, and how our culture is beginning to incorporate ways to make it a healthier process for everyone. We came away with a number of resources that we are pleased to be able to share with our community. But this is an incomplete list! Please use the comment feature on this post to add additional resources you’d like to share.
Hospice of the East Bay, Pleasant Hill, CA
Hospice of the East Bay is committed to providing the hospice and palliative care services that support and comfort people and their loved ones through the final stages of life.
Hospice of the East Bay provides compassionate end-of-life care to terminally ill patients, while offering emotional, spiritual, and grief support for the entire family. As a not-for-profit organization, we accept all medically qualified patients, regardless of their insurance status or ability to pay. We also offer free bereavement services to the entire community. Since 1977, we have served over 20,000 patients and their families.
A Yelp reviewer says: “I couldn’t imagine a better place for my father-in-law’s final days. It is located in a converted home that completely melds into the rest of a beautiful quiet neighborhood. My father-in-law had his own large room. Staff were attentive, caring, and respectful.
Most of all the beautiful gardens in the back complete with memory stones is so tranquil and peaceful. It still brings me comfort two years later to remember our own memory stone my son and I left for grandpa in that beautiful place.”
Sobonfu Somé – keeper of Dagura grieving ritual
Destined from birth to teach the ancient wisdom, ritual and practices of her ancestors to those in the West, Sobonfu, whose name means “keeper of the rituals” travels the world on a healing mission sharing the rich spiritual life and culture of her native land Burkina Faso, which ranks as one of the world’s poorest countries yet one of the richest in spiritual life and custom.
Dagara rituals involve healing and preparing the mind, body, spirit and soul to receive the spirituality that is all around us. “It is always challenging to bring the spiritual into the material world, but it is one of the only ways we can put people back in touch with the earth and their inner values.”
Zen Hospice Project, San Francisco, CA
Our mission is to help change the experience of dying. We create a space for living that offers the opportunity for individuals, their loved ones and caregivers to find comfort, connection, and healing in this shared human experience. Through our pioneering model of care, we inspire each other to live fully.
Frank Ostaseski and the Metta Institute, Sausalito, CA
Metta Institute® was established to provide education on spirituality in dying. Inspired by the Buddhist tradition, we encourage the integration of the spiritual dimensions of living, dying and transformation, through professional training, educational programs and materials.
Our Institute was formed in 2004 as an outgrowth of the Zen Hospice Project (ZHP), nationally recognized as a pioneering model in the movement to improve end-of life care. Our Director, Frank Ostaseski, helped form ZHP in 1987, and guided the program for 17 years.
Currently, the Metta Institute’s primary program is the End-of-Life Practitioner Program. The goal of the innovative training is to establish a national network of educators, advocates and guides for those facing life-threatening illness and the individuals and systems that serve them.
Judith is the Director of the Palliative Care Program at Seniors at Home, a program of the Jewish Family and Children’s Service in San Francisco, Marin and San Mateo counties. Her book, Last Acts of Kindness (2010), is a collection of her experiences being a self-described “midwife to the dying”—working in both palliative care and end-of-life care and supporting people through their personal dying processes.
A low-cost health care option for San Franciscans, with elder care protections recently restored via the work of faith groups in the Mission striving for a Covenant of Care
Improv for Alzheimers
Karen Stobbe offers workshops on how to use the tools of improv with people who have dementia.
On This American Life on NPR, Producer Chana Joffe-Walt talks to a woman named Karen Stobbe and her husband Mondy about a plan they’ve recently enacted in their family. Karen’s mother lives with them and she has dementia. Karen and Mondy are actors and they stumbled upon a skill they have that is incredibly useful in communicating with Karen’s mother – improv.
You can listen to the story at http://www.thisamericanlife.org/radio-archives/episode/532/magic-words?act=2#play – if you have trouble with the link not playing the story, play the Act 1 audio above for the “Magic Words’ story, and jump to 36 minutes in.
An “advance health care directive” lets your physician, family and friends know your health care preferences, including the types of special treatment you want or don’t want at the end of life, your desire for diagnostic testing, surgical procedures, cardiopulmonary resuscitation and organ donation.
By considering your options early, you can ensure the quality of life that is important to you and avoid having your family “guess” your wishes or having to make critical medical care decisions for you under stress or in emotional turmoil. This site by the California Office of the Attorney General offers a helpful checklist and additional resources for assembling your own AHCD.
The CCCC promotes high-quality, compassionate care for all Californians who are seriously ill or approaching the end of life.
We provide our expertise, tools and resources to families, patients, policy makers and healthcare providers to help ensure that all Californians receive high-quality palliative and end-of-life care. We also lead efforts to train healthcare professionals about Physician Orders for Life-Sustaining Treatment (POLST), as well as cultural diversity and end-of-life care in California. The CCCC helps them develop the skills they need to talk with seriously-ill patients and families facing decisions about goals of care. We work with and support local coalitions throughout the state that provide support and education to healthcare providers and those facing treatment and care decisions.
We bring together people with a passion for increasing access to palliative care to spark growth of community-based palliative care throughout California.